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Resources for Caregivers

Taking care of a loved one with Alzheimer's disease is very challenging. It requires knowledge, patience, skills, and knowing when to get help. Sadly, caregivers often neglect their own emotional and medical needs. In fact, caregivers may precede their loved ones in death for these very issues.

The Roskamp Institute Clinic is dedicated to providing education and support to caregivers. We regularly schedule educational workshops for caregivers covering a broad array of topics including Alzheimer's 101, Stress Management, Dealing with Difficult Behaviors, Legal Planning, Medicare Services, and Treatment Updates. For more information regarding schedules and times, please contact us.

We also recommend the following Florida resources:

The Florida Gulf Coast Chapter of the Alzheimer's Association
http://www.alz-tbc.org/

Caring for an Elder/Florida Dept. of Elder Affairs
http://elderaffairs.state.fl.us/english/caring.html

For a comprehensive listing of elder services in Pasco/Pinellas counties, visit The Area Agency on Aging of Pasco/Pinellas counties
http://www.agingcarefl.org/caregiver/Websites/Local

Elder Hotline: 1-800-963-5337

National Resources:

National Alzheimer's Association
http:// www.alz.org

Alzheimer's Foundation of American at
http:// www.alzfdn.org

Recommended Manuals or Books:

The Rush Manual for Caregivers (4th edition)
Available at no charge from The Rush Alzheimer's Disease Center, 710 S. Paulina Street, 8 North, Chicago, IL 60612
Telephone: (312) 942-4463

At the Crossroads: A Guide to Alzheimer's disease, dementia, and driving
Available at no charge from The Hartford Company at http://www.thehartford.com/alzheimers/index.html

Alzheimer's Early Stages: First Steps for Family, Friends, and Caregivers by D. Kuhn (2003 – 2nd edition), Hunter House Publication. ISBN: 0897933974

Creating Moments of Joy... for the Person with Alzheimer's or Dementia by J. Brackey (2004) Purdee University Press. ISBN: 155753360

Shattered Lives: Finding Hope in the Midst of Alzheimer's and Other Related Dementia by E. Chidress and P. ErkenBrack (2000). Dorrance Publishing Co. ISNB: 0805948120

Alzheimer's Disease: A Guide for Families by L.S. Powell with Katie Courtice (1993). Perseus Books. ISNB: 0201632012

There's Still a Person in There: The Complete Guide to Treating and Coping with Alzheimer's Disease by M. Castleman, D. Gallagher-Thomson, & M. Naythons (1999) Putnam Press. ISNB: 0399145710

Family Caregiver Alliance provides informational fact sheets including A Caregiver's Guide to Understanding Dementia Behaviors”
http:// www.caregiver.org or call 1-800-445-8106

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Disease of the brain, such as Alzheimer's, greatly affect family members and caregivers. Keeping caregiver's physically and emotionally healthy by providing necessary support is essential.” - Dr. Cheryl Luis